About six months ago, scientists from all over the world converged on the 2018 Ataxia Investigators Meeting. Colleagues and students discussed the latest advancements in ataxia research. Researchers were able to connect with patients and families, letting them know what progress was being made.
Some of the discussion between trainees at this meeting highlighted how great it was to be able to speak with patients and let them know what was happening in the lab. It was unfortunate that this opportunity only happened every two years.
It was at this meeting where the idea for SCAsource was born: a website where scientific articles on SCAs and related ataxias would be translated into plain language that anyone would be able to understand.